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Our Partners

The James Lind Alliance

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The James Lind Alliance (JLA) is a non-profit making initiative established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the Top 10 unanswered questions or evidence uncertainties that they agree are the most important.

Myelopathy.org

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Myelopathy.org is a non-profit organisation founded to raise awareness of degenerative cervical myelopathy and support patients, carers and professionals who live and deal with it. ​

Our objectives are to: 1) Provide an educational resource for patients, carers and professionals, 2) Develop a support community for patients and carers, 3)To become a catalyst for promoting advancements in care and management for patients with DCM

National Institute for Health Research

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The NIHR was established in 2006 under the government’s health research strategy, Best Research for Best Health.  By connecting universities, the NHS, local government, other research funders, patients and the public, we deliver and enable world-class research that shapes policy, strengthens the health and care system, drives economic growth, advances science for national and international benefit, and improves lives.

Our Team

Principal Investigators

Principal Investigators are responsible for the leadership and conduct of the study.

Mark Kotter

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Principal Investigator

NIHR Clinician Scientist & Honorary Consultant in Neurosurgery,

Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Benjamin Davies

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Co-principal Investigator

NIHR Academic Clinical Fellow in Neurosurgery, Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge,
UK.

Steering Committee Members

The Steering Committee is a multi-stakeholder partnership that oversees the overall delivery of the project.

Brian Kwon

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Chairperson, AOSpine Spinal Cord Injury Knowledge Forum.

University of British Columbia.

Vancouver, Canada.

Michael Fehlings

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Past Chairperson,
AOSpine Spinal Cord Injury Knowledge Forum. University of Toronto. Toronto, Canada.

Shekar Kurpad

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AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Froedtert & the Medical College of Wisconsin, Milwaukee, USA.

Bizhan Aarabi

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AOSpine Spinal Cord Injury Knowledge Forum  Steering Committee Member.

University of Maryland. 

Baltimore, USA.

Vafa Rahimi-Movaghar

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AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Sina Trauma and Surgery Research Center. Tehran, Iran.

James Harrop

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AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Thomas Jefferson University. Philadelphia, USA.

James Guest

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Professor of Neurological Surgery, Miller School of Medicine, Miami, Florida, USA.

Armin Curt

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Professor for Paraplegiology and Medical Director, Balgrist University Hospital, Spinal Cord Injury Center, University of Zurich, Switzerland.

Angus McNair

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NIHR Clinician Scientist, Center for Surgical Research, Bristol Medical School: Population Health Sciences, University of Bristol, Bristol, UK.

Sukhvinder Kalsi-Ryan

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Assistant Professor at the Department of Physical Therapy, University of Toronto.

Clinician Scientist, 

Toronto Rehabilitation Institute-LC, University Health Network, Toronto, Canada.

Iwan Sadler

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DCM Patient Representative &

Director of Myelopathy Patient Support at Myelopathy.org, Wales.

Julio Furlan

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Assistant Professor, Division of Physical Medicine and Rehabilitation, University of Toronto & Clinician Investigator, Toronto Rehabilitation Institute. Toronto, Canada.

Ellen Sarewitz

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DCM Patient Representative & Partner of Goffin Consultancy, Healthcare Consultants, UK.

Delphine Houghton

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DCM Patient Representative &

Public Relations Lead,

Myelopathy.org, UK.

Julia Carter

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DCM Patient Representative,
UK.

Margot Miller

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DCM Patient Representative & Administrator at Myelopathy.org, Vermont, USA.

Timothy Boerger

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DCM Patient Representative & Graduate PhD Student + Research Assistant, Dept of Physical Therapy, Marquette University, Milwaukee, USA.

Paige Howard

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DCM Patient Representative, USA

Admissions and Graduation Advisor,

California State University, Bakersfield, USA.

Jillian Polasik

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DCM Patient Representative & Administrator at Myelopathy.org

Shirley Widdop

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DCM Patient Representative & Administrator at Myelopathy.org

Theresa Brislin

DCM Patient Representative, USA.

Carla Salzman

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DCM Patient Representative, USA. 

Katherine Palmieri

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Associate Professor, Department of Anesthesiology, The University of Kansas Medical Center, USA.

Robert Chen

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Chair in Movement Disorders & Professor of Medicine (Neurology),
University of Toronto & Toronto Western Hospital, Canada.

James Milligan

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Family Medicine Physician,

Centre for Family Medicine Family Health Team & McMaster University, Ontario, Canada.

Jefferson R Wilson

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Assistant Professor, Division of Neurosurgery, Department of Surgery, University of Toronto, 

Toronto, Canada.

Geno J. Merli

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Professor of Medicine, Chief Medical Officer & Co-director of Jefferson Vascular Center, Jefferson Medical College, Thomas Jefferson University Hospital, Philadelphia, USA.

Global Partners

Global partners are part of our extended study group and form an expert panel of advisors & collaborators. 

Lindsay Tetreault

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Medical Student, 

University College Cork, Ireland

& Postdoctoral Research Fellow. 

Division of Neurosurgery, University of Toronto, Toronto, Ontario, Canada.

Robert Grossman

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Chair in Neurosurgery & Professor of Neurosurgery, Division of Neurosurgery, Houston Methodist Hospital, Houston, Texas, USA.

Angelos Kolias

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Clinical Lecturer in Neurosurgery, University of Cambridge, Cambridge, UK.

COS researcher (http://www.comet-initiative.org/studies/details/833?result=true)

Nish Srikandarajah

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Specialist Trainee in Neurosurgery & PhD candidate, The Walton Centre NHS Foundation Trust and the University of Liverpool.

COS researcher (http://www.comet-initiative.org/studies/details/824)

Jibin Francis

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Consultant Spinal Neurosurgeon with specialist interests in degenerative spinal disease, tumour and trauma. 

Cambridge,
UK & Port Elizabeth, South Africa.

Mohamad Bydon

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Staff Neurosurgical Consultant & Associate Professor,

Department of Neurologic Surgery, Department of Orthopedic Surgery and Department of Health Services Research, 

Mayo Clinic College of Medicine and Science,

Rochester, Minnesota, USA.

Rohit Amritanand

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Consultant Spinal Orthopaedic Surgeon & Associate Professor,

Department Of Orthopaedics,

Christian Medical College,

Tamil Nadu, India.

Peter Vajkoczy

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Chairman & Professor of Neurosurgery, Department of Neurosurgery, 

Charité Universitätsmedizin Berlin,

Germany.

Vanessa Hubertus

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Neurosurgical Resident,

Charité Universitätsmedizin Berlin,

Germany.

So Kato

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Consultant Spinal Surgeon

The University of Tokyo Hospital, 

Tokyo, Japan.

Aria Nouri

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Neurosurgery Resident

Geneva University Hospitals, Switzerland

& Visiting Scholar,

Department of Neurosurgery,
University of Cincinnati College of Medicine, USA.

Vincent Healy

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Specialist Trainee in Neurosurgery,

Royal College of Surgeons in Ireland and Beaumont Hospital, 

Dublin, Ireland.

Jin Tee

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Associate Professor & Complex Spine and Neurosurgeon,

The Alfred and Peninsula Health 

Head, Spine and Neurotrauma,
National Trauma Research Institute

Central Clinical School, Monash University

Wilco Peul

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Professor & Chair,

University Neurosurgical Center Holland,

Leiden University Medical Center & The Hague, 

Netherlands.

Juan Jose Zamorano

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Spinal Surgeon

Clínica Alemana de Santiago,

Santiago, Chile.

Ralph Stanford

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Consultant Spinal Surgeon,

Prince of Wales Hospital Sydney

& Chairperson, Spinal Network Australia.

Marcelo Valacco

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Consultant Spinal Surgeon & Spine Center Director, Hospital Churruca Visca,
Buenos Aires, Argentina.

Pia Vayssiere

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Neurosurgery Resident

Geneva University Hospitals, 

Switzerland.

Management Committee Members

The Management Committee handles the day-to-day execution and administration of RECODE-DCM.

Mark Kotter

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NIHR Clinician Scientist & Honorary Consultant in Neurosurgery,

Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Benjamin Davies

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NIHR Academic Clinical Fellow in Neurosurgery, Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Danyal Z Khan

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Academic Foundation Programme Trainee in Neuroscience,

University of Cambridge, 

Cambridge, UK.

Ellen Sarewitz

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DCM Patient Representative & Partner of Goffin Consultancy, Healthcare Consultants, UK.

Oliver Mowforth

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Undergraduate Medical Student, University of Cambridge,

Cambridge, UK.

Iwan Sadler

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DCM Patient Representative &

Director of Myelopathy Patient Support at Myelopathy.org, Wales.

Olesja Hazenbiller

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Research Project Manager,

AO Spine Spinal Cord Injury Knowledge Forum, Switzerland.

Toto Gronlund

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Advisor, James Lind Alliance, National Institute for Health Research, UK.