image6
image7

Our Partners

The James Lind Alliance

image8


The James Lind Alliance (JLA) is a non-profit making initiative established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the Top 10 unanswered questions or evidence uncertainties that they agree are the most important.

Myelopathy.org

image9

Myelopathy.org is a non-profit organisation founded to raise awareness of degenerative cervical myelopathy and support patients, carers and professionals who live and deal with it. ​

Our objectives are to: 1) Provide an educational resource for patients, carers and professionals, 2) Develop a support community for patients and carers, 3)To become a catalyst for promoting advancements in care and management for patients with DCM

National Institute for Health Research

image10

The NIHR was established in 2006 under the government’s health research strategy, Best Research for Best Health.  By connecting universities, the NHS, local government, other research funders, patients and the public, we deliver and enable world-class research that shapes policy, strengthens the health and care system, drives economic growth, advances science for national and international benefit, and improves lives.

Our Team

Principal Investigators

Principal Investigators are responsible for the leadership and conduct of the study.

Mark Kotter

image11

Principal Investigator

NIHR Clinician Scientist & Honorary Consultant in Neurosurgery,

Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Benjamin Davies

image12

Co-principal Investigator

NIHR Academic Clinical Fellow in Neurosurgery, Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge,
UK.

Steering Committee Members

The Steering Committee is a multi-stakeholder partnership that oversees the overall delivery of the project.

Brian Kwon

image13

Chairperson, AOSpine Spinal Cord Injury Knowledge Forum.

University of British Columbia.

Vancouver, Canada.

Michael Fehlings

image14

Past Chairperson,
AOSpine Spinal Cord Injury Knowledge Forum. University of Toronto. Toronto, Canada.

Shekar Kurpad

image15

AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Froedtert & the Medical College of Wisconsin, Milwaukee, USA.

Bizhan Aarabi

image16

AOSpine Spinal Cord Injury Knowledge Forum  Steering Committee Member.

University of Maryland. 

Baltimore, USA.

Vafa Rahimi-Movaghar

image17

AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Sina Trauma and Surgery Research Center. Tehran, Iran.

James Harrop

image18

AOSpine Spinal Cord Injury Knowledge Forum Steering Committee Member.

Thomas Jefferson University. Philadelphia, USA.

James Guest

image19

Professor of Neurological Surgery, Miller School of Medicine, Miami, Florida, USA.

Armin Curt

image20

Professor for Paraplegiology and Medical Director, Balgrist University Hospital, Spinal Cord Injury Center, University of Zurich, Switzerland.

Angus McNair

image21

NIHR Clinician Scientist, Center for Surgical Research, Bristol Medical School: Population Health Sciences, University of Bristol, Bristol, UK.

Sukhvinder Kalsi-Ryan

image22

Assistant Professor at the Department of Physical Therapy, University of Toronto.

Clinician Scientist, 

Toronto Rehabilitation Institute-LC, University Health Network, Toronto, Canada.

Iwan Sadler

image23

DCM Patient Representative &

Director of Myelopathy Patient Support at Myelopathy.org, Wales.

Julio Furlan

image24

Assistant Professor, Division of Physical Medicine and Rehabilitation, University of Toronto & Clinician Investigator, Toronto Rehabilitation Institute. Toronto, Canada.

Ellen Sarewitz

image25

DCM Patient Representative & Partner of Goffin Consultancy, Healthcare Consultants, UK.

Delphine Houghton

image26

DCM Patient Representative &

Public Relations Lead,

Myelopathy.org, UK.

Julia Carter

image27

DCM Patient Representative,
UK.

Margot Miller

image28

DCM Patient Representative & Administrator at Myelopathy.org, Vermont, USA.

Timothy Boerger

image29

DCM Patient Representative & Graduate PhD Student + Research Assistant, Dept of Physical Therapy, Marquette University, Milwaukee, USA.

Paige Howard

image30

DCM Patient Representative, USA

Admissions and Graduation Advisor,

California State University, Bakersfield, USA.

Jillian Polasik

image31

DCM Patient Representative & Administrator at Myelopathy.org

Shirley Widdop

image32

DCM Patient Representative & Administrator at Myelopathy.org

Theresa Brislin

DCM Patient Representative, USA.

Carla Salzman

image33

DCM Patient Representative, USA. 

Katherine Palmieri

image34

Associate Professor, Department of Anesthesiology, The University of Kansas Medical Center, USA.

Geno J. Merli

image35

Professor of Medicine, Chief Medical Officer & Co-director of Jefferson Vascular Center, Jefferson Medical College, Thomas Jefferson University Hospital, Philadelphia, USA.

 

Jefferson R Wilson

image36

Assistant Professor, Division of Neurosurgery, Department of Surgery, University of Toronto, 

Toronto, Canada.

 

Global Partners (coming soon)

Global partners are part of our extended study group and form an expert panel of advisors & collaborators. 

Lindsay Tetreault

image37

Medical Student, University College Cork, Ireland.   

Postdoctoral Research Fellow. 

Division of Neurosurgery, University of Toronto, Toronto, Ontario, Canada.

Robert Grossman

image38

Chair in Neurosurgery & Professor of Neurosurgery, Division of Neurosurgery, Houston Methodist Hospital, Houston, Texas, USA.

Angelos Kolias

image39

Clinical Lecturer in Neurosurgery, University of Cambridge, Cambridge, UK.

COS researcher (http://www.comet-initiative.org/studies/details/833?result=true)

Nish Srikandarajah

image40

Specialist Trainee in Neurosurgery & PhD candidate, The Walton Centre NHS Foundation Trust and the University of Liverpool.

COS researcher (http://www.comet-initiative.org/studies/details/824)

Jibin Francis

image41

Consultant Spinal Neurosurgeon with specialist interests in degenerative spinal disease, tumour and trauma. 

Cambridge, UK & Port Elizabeth, South Africa

Vanessa Hubertus

Neurosurgical Resident,

Charité Universitätsmedizin Berlin,

Germany

Management Committee Members

The Management Committee handles the day to day administration of RECODE-DCM.

Mark Kotter

image42

NIHR Clinician Scientist & Honorary Consultant in Neurosurgery,

Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Benjamin Davies

image43

NIHR Academic Clinical Fellow in Neurosurgery, Academic Neurosurgery Unit & Anne McLaren Laboratory of Regenerative Medicine, University of Cambridge, Cambridge, UK.

Danyal Z Khan

image44

Academic Foundation Programme Trainee in Neuroscience,

University of Cambridge, 

Cambridge, UK.

Ellen Sarewitz

image45

DCM Patient Representative & Partner of Goffin Consultancy, Healthcare Consultants, UK.

Oliver Mowforth

image46

Undergraduate Medical Student, University of Cambridge,

Cambridge, UK.

Iwan Sadler

image47

DCM Patient Representative &

Director of Myelopathy Patient Support at Myelopathy.org, Wales.

Olesja Hazenbiller

image48

Research Project Manager,

AO Spine Spinal Cord Injury Knowledge Forum, Switzerland.

Toto Gronlund

image49

Advisor, James Lind Alliance, National Institute for Health Research, UK.