REsearch objectives and COmmon Data Elements for DCM

REsearch objectives and COmmon Data Elements for DCMREsearch objectives and COmmon Data Elements for DCM

DCM stands for Degenerative Cervical Myelopathy and our study is a consensus process to improve research efficiency in DCM


What is Degenerative Cervical Myelopathy?

Degenerative cervical myelopathy (abbreviated to DCM) is a condition where ‘wear and tear’ arthritis (‘degenerative’) affects the part of the spine in your neck (‘cervical’), causing structural changes that compress and damage your spinal cord (‘myelopathy’). DCM is also known as 'cervical spondylotic myelopathy' or 'cervical stenosis'.


Why is DCM important?

It is a common disease, estimated to affect up to 5% of people over the age of 40. Despite this, there many questions regarding its cause and treatment that we do not yet fully understand. Unfortunately, it is also disabling, with very few patients making a full recovery and therefore being left with problems such as pain, difficult using their hands or difficulty walking. 


How can we help patients with DCM?

In order to improve the lives of those affected, we need to gain a better understanding of the condition. We hope to do so with the help of patients, their supporters, researchers, doctors, surgeons and allied health professionals. RECODE-DCM hopes to inform the focus of future DCM research through our aims:

1. Establish a standardised definition for DCM.

2. Create a list of unanswered DCM research questions, ranked according to priority.

3. Create a standardised set of baseline characteristics and outcomes we should be measuring in DCM research.

All participants will have the opportunity to be recognised as a PubMed-citable collaborator on all study publications

The listing of each collaborator name will be listed in our study cohort and serves as a search link in PubMed. More information can be found in our Authorship Guidelines.

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Please feel free to contact us or our partners if at any point you have any questions, concerns or need support.